The Aarskog Foundation

This cause was part of Schools Back Race
This unique race URL is https://ecoracing.co/cause/the-aarskog-foundation-591/

The Aarskog Foundation is the International society for Aarskog Syndrome and people living with Aarskog Syndrome (AS) of all nationalities.

We are an international network of patients, women and families faced with common challenges derived from the rarity of our condition.
Addressing Aarskog Syndrome is vital in order for it to be better understood as a complex, rare, lifelong condition affecting 0.4% per million in the general population.

Patients, women and young adults living with Aarskog Syndrome come together through The Aarskog Foundation lifting their voices through advocacy and exchange experiences. To this end we unite, share and educate the general public and clinicians about our condition. We bring Aarskog Syndrome to the agenda of local government, schools and organisations and institutions across the world for the greater good of our community.

Donations to The Aarskog Foundation help to continue the work we do to support patients, women, young adults and their families through our advocacy, community outreach, educational materials, research and also outreach to doctors.

Your support will bring hope to many and have a global impact on the work we do.

Our fundraising target is: £25000

Gross monies raised so far: £72

Supporters so far: 6

Tagged in: AarskogSyndrome AskAboutAarskog TheAarskogFoundati

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